Thursday, 16 September 2010
Patience is a virtue...
So it has taken me about 19 months to get to this point. What is frustrating me is that I have tried to get hold of someone at the hospital where I will be having my treatment to find out when I will be going in. After all, I do have a life, which because of the nature of the treatment and the fact it made me unwell previously, I have to plan around my admission. It means I will probably be out of action and extremely tired for about four weeks, if it was anything like the last infusion I had. So, when the hospital and Rheumatology department fail to return my calls, inevitably I become very impatient. I am suffering, and isn’t it the main purpose of the NHS that people are not left to suffer in this country? I read an article recently that suggested the NHS treat Rheumatoid Arthritis diagnosis as seriously as cancer. This is because people with RA, on average, die 10 years younger than a healthy person. So if our lives are being cut short by a decade already, our healthcare providers should be doing all they can to ensure early treatment to effectively control this disease. I want to live a healthy, long life but imagine that this waiting around will be a common occurrence with the NHS. I wonder how quickly I would be treated if I had the money to afford private care?
I am still waiting for someone to get back to me about my treatment. Maybe in the meantime you would like to share your stories of timings between diagnosis and treatment, so I have something to read while I wait… and wait….