tag:blogger.com,1999:blog-1379278689668630184.post9052493156642716947..comments2018-10-25T12:38:26.110+01:00Comments on There's Always Rheum for Improvement: Thanks for comingRheuma Girlhttp://www.blogger.com/profile/11028101927253464226noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-1379278689668630184.post-15319232589222134742010-08-20T18:10:31.260+01:002010-08-20T18:10:31.260+01:00It's nice to see such a gutsy young lady takin...It's nice to see such a gutsy young lady taking such a positive view on life and despite your tender age showing such maturity.I'm very sure that in your lifetime there will be a one off switch for this auto-immune disease and other related ones. Even as we speak they are doing exciting trials (phase 3) with Otelixizumab to permanently switch off type one diabetes with just a single treatment. This is also an auto immune disease only of the pancreas, and they are in phase 1 trials for RA now. Who knows when the breakthough will come or what will be available in ten short years.So keep your pecker up and stay chirpy.Regards to all you fellow sufferers. Ben Corde.Anonymoushttps://www.blogger.com/profile/08055506125484002018noreply@blogger.comtag:blogger.com,1999:blog-1379278689668630184.post-21559991093050369212010-08-20T09:41:15.113+01:002010-08-20T09:41:15.113+01:00I omitted to add that B6 is also a mild diuretic a...I omitted to add that B6 is also a mild diuretic and helps reduce water retention.For those like me who can't take diuretics because of interaction with Methotrexate, it makes sense to keep your B6 levels normal.I split my 100mg tablet into two as B6 is water soluble and the body gets rid of it in eight hours so I take half at night and half in the morning.So far Methotrexate and hydroxychloroquine plus folic acid has all but put me in remission and given me my life back without any side effects. B6 may just be the icing on the cake to get my ESR to stay below 20 and CRP down to zero.I still get some swelling and tightness in the ankles and legs in the evening but this has gone by morning and is not RA related anyway according to my rheumatologist. On Monday we did a 5 mile walk on Exmoor taking in some big hills and although I payed for it on Tuesday it was a huge leap forward.I hope this encourages you all out there to keep trying and find WHAT IS RIGHT FOR YOU.Anonymoushttps://www.blogger.com/profile/08055506125484002018noreply@blogger.comtag:blogger.com,1999:blog-1379278689668630184.post-89252365432799125082010-08-17T17:42:50.109+01:002010-08-17T17:42:50.109+01:00Did you read about the trial with Vit B6 on ARUK. ...Did you read about the trial with Vit B6 on ARUK. A small group who were given 100mg daily had significantly reduced inflammation markers than the placebo group after 12 weeks.It appears that all RA sufferers are deficient in this vitamin. My RA consultant okayed me to take this with my MTX and HCQ but said not to jump to too many conclusions as it was only a small trial. I found this product cheap to buy and started to supplement with it.Here's hoping.Anonymoushttps://www.blogger.com/profile/08055506125484002018noreply@blogger.comtag:blogger.com,1999:blog-1379278689668630184.post-78744014651927758262010-08-14T09:03:55.003+01:002010-08-14T09:03:55.003+01:00Sending lots of encouragement for the healthy diet...Sending lots of encouragement for the healthy diet thing. I have found sticking with the GI principles a good move. When I get on the scales it says "One at a time please!" Like you, I have found that staying alive and being able to function more important that a few kilos here and there- it is very easy to get obsessive and shallow, but sadly after years of steroids an immobility I have got very over weight and it is tough. How about writing more for a hobby- I love your blog!Jblacey https://www.blogger.com/profile/13984196667527277155noreply@blogger.comtag:blogger.com,1999:blog-1379278689668630184.post-61110099964216960602010-08-13T23:29:03.290+01:002010-08-13T23:29:03.290+01:00hope all us dietitians arnt that bad! xxhope all us dietitians arnt that bad! xxlaura nicholsonnoreply@blogger.com