tag:blogger.com,1999:blog-1379278689668630184.post3558605457592582991..comments2018-10-25T12:38:26.110+01:00Comments on There's Always Rheum for Improvement: Round ThreeRheuma Girlhttp://www.blogger.com/profile/11028101927253464226noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-1379278689668630184.post-60882136963978956742011-06-04T13:40:49.620+01:002011-06-04T13:40:49.620+01:00Yes, the ups and downs of RA, I too get up early a...Yes, the ups and downs of RA, I too get up early and by 10-11am am so fatigued I'm cross eyed. My meds seem to have pain & swelling better (Enbrel & MTX), but the fatigue is causing issues @ work & eating my spirit. Then shame on me later when I plan to do something, heh. Anyway you are in my RA bookmarks, and will check in occasionally. Thanks for helping to spread the awareness of Rheumatoid Disease.Russell Nultyhttp://www.squidoo.com/rheum_with_a_viewnoreply@blogger.comtag:blogger.com,1999:blog-1379278689668630184.post-16970732585744321312011-05-21T07:36:54.717+01:002011-05-21T07:36:54.717+01:00Hi,
I love the design of your blog and think the ...Hi,<br /><br />I love the design of your blog and think the title "There's always Rheum for Improvement" is quite clever! :) I've been living with JRA for seven years (since I was 12) and since I turned 19, I've been blogging about my experiences too. I've never heard of Rituximab, but my 6 weekly infusions are called "Infliximab!" so they sound similar and I'm assuming yours is a biologic drug too? I'm currently not on a high dosage of prednisolone/steroids/coretzone since I have a lot of damage, degeneration and general thinning of the bones that's occured from my Arthritis (in my fingers but a lot happened in my hips - had two hip replacements within the last two years). God, that's worst...when pain keeps you up at night. Do you find you have your own pharmaceutical drugstore with the variety of painkillers you have? haha. :) Do painkillers (e.g. voltaren, panadeine, etc) help you at all? Sounds like quite a vicious cycle that's happening to you atm! I agree, I wish that my Arthritis wouldn't interfere with my life so much as well...although since getting my hips done, things are a lot more better than they use to be (i.e. before I was completely bed-ridden almost 24/7 and was in constant, unbearable agony!). I still have my flare-ups and niggling pain, but I guess I do okay for me. Your boyfriend must be very understanding with your Arthritis. For a long time I thought that I would never find anyone, because this condition hindered my life so much! I really hope that Rituximab works out for you and gives you some much needed relief real soon!<br /> <br />Regards,<br />Lauretta :)Laurettahttp://kidsgetarthritistoo.wordpress.com/noreply@blogger.comtag:blogger.com,1999:blog-1379278689668630184.post-67501854683746612232011-05-11T09:40:54.694+01:002011-05-11T09:40:54.694+01:00I totally understand your 'middle of the night...I totally understand your 'middle of the night' dilemma - I have it too. I'm on Infliximab but it has only worked for 6 months and the pain is on its way back. I frequently find myself sick of the sound of my complaining - I really feel for my hubby because he gets all of my complaining everyday. He also knows when I'm struggling but not complaining! Fingers crossed for the Rituximab xxxSarahttps://www.blogger.com/profile/03530966135840566606noreply@blogger.com